Press Release Clinical Trials & Research June 29, 2026 CareEvolution and the Crohn’s & Colitis Foundation to launch first-of-its-kind direct-to-patient IBD research registry New digital platform broadens participation, enhances participant experience, and delivers deeper insights to advance IBD research and patient care Ann Arbor, Michigan – CareEvolution®, a healthcare technology company empowering health systems, researchers, foundations, and patients to collect and unify health data, has partnered with the Crohn’s & Colitis Foundation to launch a long-term, direct-to-patient research registry designed to transform inflammatory bowel disease (IBD) research. The registry will capture data directly from patients throughout their IBD journey and integrate it with clinical records, creating a comprehensive view of patient health experiences to drive discoveries that advance understanding and improve care for people living with IBD. “This partnership marks an important step toward building an IBD research resource that reflects the real-world experiences of people living with these conditions,” said Angela Dobes, Senior Vice President, IBD Plexus, Crohn’s & Colitis Foundation. “By prioritizing outcomes that matter to patients and supporting participation beyond the clinic, we are broadening opportunities for engagement and enabling patients to contribute in ways that align with their needs. We are developing a platform that generates insights that are both scientifically rigorous and deeply relevant to the IBD community—helping advance more personalized treatment approaches.” Built on CareEvolution’s MyDataHelps® research platform, the registry will enable participants to link their health records, share patient-reported outcomes (PROs), and track changes in their condition over time. The platform’s flexible design enables ongoing innovation—allowing new data sources and participant features to be added as the registry evolves. Researchers from industry and academia can collaborate with the Crohn’s & Colitis Foundation to design sub-studies and access registry data through the Foundation’s IBD Plexus® real-world data platform. By engaging directly with patients, the registry will reduce barriers to participation, enable contributions from any location, and reach individuals who might otherwise have limited opportunities to take part in research. The registry is set to launch in 2026 to gather early insights ahead of a broader rollout to the IBD community in 2027. “IBD affects people far beyond the moments they interact with the healthcare system,” said Vik Kheterpal, M.D., Principal at CareEvolution. “This registry will accelerate innovation in the IBD space while promoting self-efficacy and arming participants with better data about their own health and conditions.” Over time, the Crohn’s & Colitis Foundation and CareEvolution envision the registry becoming a cornerstone resource for the IBD research community—enabling studies that connect clinical care with everyday life, advancing more personalized treatment approaches, and empowering patients with insights to better understand and manage their disease. For more information, visit CareEvolution.com and CrohnsColitisFoundation.org. About the Crohn’s & Colitis Foundation The Crohn’s & Colitis Foundation is the leading nonprofit organization focused on both research and patient support for inflammatory bowel disease (IBD), with the mission of curing Crohn’s disease and ulcerative colitis and improving the quality of life for the millions of Americans living with IBD. The Foundation’s work is dramatically accelerating the research process, while also providing extensive educational and support resources for patients and their families, medical professionals, and the public. About CareEvolution CareEvolution works with health systems, researchers, foundations, and millions of patients to unify clinical, claims, and patient-reported data in secure, cloud-based platforms. MyDataHelps, CareEvolution’s digital clinical research platform, supports participant-centric, longitudinal research by integrating surveys, health records, and data generated in everyday life. For more information, visit CareEvolution.com. Let’s Fix Healthcare™ Together.
